Comments on: Misdiagnosis of Juvenile Diabetes Type 1

By: Monique

Monique — Thu, 19 Jan 2012 07:12:23 +0000

My daughter was diagnosed with diabetes last month. It was strange because she was not sick and had been feeling normal except for pressure in her ears and she was drinking a lot of water. I took her to the doctor thinking maybe she had an ear infection. He said her ears were fine but she had sugar in her urine and we were sent to the emergency room at the children’s hospital.

The thing that bothers me is that no test were done other than measuring her blood glucose. When I asked the doctors if it could possibly be something besides diabetes he said yes but they are rare and he refused to tell me what they were. My daughter has not taken a single shot of insulin for 9 days now but continues to test up to 15 times a day and her blood glucose readings have stayed within normal range. Is it the honeymoon phase or was she misdiagnosed? I really don’t get it.

By: Mindy

Mindy — Fri, 16 Dec 2011 08:38:26 +0000

My son was diagnosed with type 1 when he was 6. He had 2 sets of tubes in his ears prior to his dx, as well as allergy shots and lots of benedryl. He also got mono and had a swollen spleen before his dx. He is now 19 and his blood sugars suck. I don’t know what to do with him. He has been on a pump since he was 7, but now that he is older he could care less about checking his blood and has told me he would rather be dead than deal with diabetes. I don’t know what caused him to get the diabetes since it does not run in either side of our family.

By: Kimberly

Kimberly — Sat, 03 Dec 2011 14:07:59 +0000

My five-year-old son was diagnosed with Type 1 on November 29, 2011. We were told that we caught it extremely fast and according to tests, he had only been experiencing problems for about a month. He received a flu shot on October 31, 2011. This was also Halloween. I’m convinced that the nasal mist vaccine that contained the live virus and his pancreas bringing out all of the healthy Beta cells in force to take care of the sugary candy was the perfect storm. If I had only decided against the flu shot, we may not be dealing with this nightmare.

By: Misty Reigenborn

Misty Reigenborn — Mon, 28 Nov 2011 19:03:44 +0000

There are studies that have shown connections between traumatic life events and the onset of type 1 diabetes. Our children were removed from our custody in 2005 because we were homeless. They were removed by police officers and taken to the county “orphanage”.

We got housing but it was still another month before our children were returned. A few days before our middle son who was then three was diagnosed with type 1 diabetes, he told his father and I during a visit that he promised he would be good if we would just let him come home. It was heartbreaking and I truly believe that the trauma of being taken away from his loving but poor parents is what brought on our son’s type 1 diabetes.

Thank you so much for letting others share their experiences and situations. Sometimes it’s not easy to believe that diseases can be brought on or caused by the things that they are, but education and understanding is always wonderful.

By: Alli

Alli — Thu, 24 Nov 2011 13:10:00 +0000

Reading some of the comments on here really made me think about my son’s Type 1 diabetes. He was diagnose last January (2-3 months after having the flu jab. It was a total shock when they diagnosed him but he did have all the symptoms (losing weight, frequent urination, thirst and lethargy).

The hospital and Drs have been fantastic but a year on he is still on really low doses of insulin (breakfast 1.5, lunch 1, dinner 1.5 and slow release 5). We are told he is still Honeymooning and eventually he’ll have to up his intake. I have a nagging doubt in my mind about misdiagnosis or it being caused by the flu jab. How can you find out if he can do without his insulin without harming him??

By: Bernadette DeAngelis

Bernadette DeAngelis — Tue, 01 Nov 2011 17:28:00 +0000

I was diagnosed with type 1 diabetes at the age of 58 after being rushed to the hospital with ketoacidosis and an AIC of 15.5. I also had a sepsis infection that the hospital reports states came from a bladder infection.

Ironically, the month before I went into the hospital I had surgery for a perianal abscess. In the hospital I was put on insulin and have been under the care of an endorinologist since then. However, I recently found out that I am type 2, not type 1, which my doctor confirmed. I think I should have been weened off of insulin after the infection cleared which never happened. I am now looking for a second opinion. Also, I am reducing the amount of insulin I take and haven’t seen a great difference in my readings.

This has totally changed my life. I was working and had to leave because it was so difficult keeping up with the routine. I wish I knew what damage could be caused by injecting insulin when you don’t need it?

By: Eleni

Eleni — Sat, 11 Jun 2011 13:21:55 +0000

I am 16 years old. I diagnosed with juvenile diabetes almost three months. I was at the hospital for nine days and i was taking insulin three or four times a day. I had an easy surgery the second day in hospital. When I went back home I was taking insulin for just two weeks. Then we realized, I didn’t need insulin anymore. Doctor said that is honeymoon period. Now, I have normal sugar-blood levels without insulin more than two months.

Can doctors made misdiagnosis for diabetes?

By: Steve

Steve — Fri, 27 May 2011 00:26:27 +0000

My 10 year old son was diagnosed with type 1 diabetes in March of this year. I was heart broken for Him. They told us that He would never produce insulin again period accept it. We started him on insulin and completely changed His diet. After a month He needed less and less insulin, doctors then said that would stop and He would never produce more that 30% of what He needs. 6 weeks in He did not need any insulin, doctors then said its a honeymoon stage. I think they are wrong about Him having it in the first place. When I looked back at His carb intake He was drinking 3 to 4 glasses of apple juice 3 to 4 glasses of V* fusion a day. Thinking it was a healthy choice. Looking at the sugars and carbs in all that was over 400 carbs before He at any meals. My thoughts are He was overloaded and shut down. Now that His diet has changed He is recovering. I truly think the doctors got it wrong. Anyone else experience this please email me at steveloans@msn.com

By: John

John — Tue, 24 May 2011 19:01:28 +0000

I was diagnosed with type 1 diabetes 10 years ago, when I was 24. Prior to that I’ve had issues with reoccurring ear infections, and multiple sets of tubes. I want to say I’ve had about 3-4 sets put in.

I was given multiple vaccinations in preparation of studying in Seoul, Korea, a year prior to me developing type 1 diabetes.

I have always speculated I developed this horrible disease as a result of medication I took (antibiotics for my ear infections or vaccination(s) I was given). But this theory of tubes in the ear makes me even more interested to find out just how many T1D have had tubes when they were younger.

By: Amy F.

Amy F. — Fri, 20 May 2011 01:39:34 +0000

My daughter was diagnosed with type 1 diabetes in January of this year. She is 11. At a follow-up, she was diagnosed with hashimoto’s syndrome (hypothyroidism which is associated with type 1 diabetes). All of her blood tests has shown to be within limits when we have gone to our appointments. Recently she was extremely ill (vomiting, running a fever). For three weeks she has not had to take her novolog for meals and her sugars have been fine and within limits. We still continue with the night-time, levemir (I still err on the caution side). Has anyone else experience this with their child? Are just in a “honeymoon” phase as we were told by the NP? Or, by chance, could she have been misdiagnosed and her numbers out of whack simply because her thyroid was “out-of-whack”? If anyone could offer input, that would be great.